Diabetes Blog Week: Day Four

Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

Living in the UK, I consider myself to be very lucky. The NHS is something that we are entitled to over here, and means that we can receive the right treatment, without having to worry about whether we can afford it.

Since the day I was born, I have been seen by so many different nurses, doctors, specialists, for all sorts of reasons. I dread to think of the stress I caused my mum and dad, growing up! All in all, I do feel I have been very lucky, in my experiences with my healthcare team. They’re doing a great job at keeping me alive!

When I was first diagnosed with diabetes in September 2011, my DSN went way beyond her duty, to help me. I was not used to someone going to so much effort to find out what was wrong, whether there were links between my diabetes and other healthcare issues, and to make sure I was seeing the right people. If I didn’t have Jacqui as my first DSN, I think I’d have a very different view of the NHS. I am ever grateful for the hard work that she put into making my diabetes as less a burden as possible.

That was then and this is now. I love the fact that GP’s, consultants, nurses, the lot, are starting to take part in the diabetes online community. I think it shows how keen they are to see how a person with diabetes, lives their life, on a day to basis; not just how they are in their 6 monthly check up.

Looking at the care I’ve received as an individual, I’ve had some of the best and some of the worst. With the worst, I threw it out the window and changed GP surgeries. It was the best decision I could have made. My new GP asks me how my diabetes is, no matter why I’ve come to see him. The surgery contacts me to remind me about my feet check, my HBA1c and my flu jab. All this, in comparison to being made to seem an inconvenience by my old surgery, for asking for these things.

If there was a Medical Genie, I would ask for one thing, and one thing only. I would wish to have more time with my diabetes nurse and consultant. It’s been two years since I saw the consultant, I don’t even know his name. I last saw my DSN more often and for longer. I see my DSN once every 6 months, and for 10 minutes. I check my levels 5 times a day, every day. I deal with the highs and I deal with the lows. I approach the DOC to try to overcome obstacles. I get sad and frustrated by my diabetes, a lot. I know I’m not the only one. When my DSN asks me how I’ve been getting on, then, how do I put 6 months’ worth of diabetes tales, into 10 minutes?


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